THE FREIGHT industry in Victoria got together on Friday 25 August for the first Friedreich’s Ataxia Charity Golf Day since 2019.

The event began in 2012 as a fundraiser to support the fight against Friedreich’s Ataxia – a rare degenerative disease that tends to develop in children and teens, damaging the spinal cord, nerves and a portion of the brain.

This year’s event was held beneath big blue skies at the Heritage Golf and Country Club in the Yarra Valley.

Freight forwarder and customs broker Freight on Board hosted this year’s golf day, which attracted members from the local industry as well as visitors from Hong Kong, Germany and the US.

The event consistently brings in generours support from the industry, all of which is donated to researching Friedreich’s Ataxia and supporting the people who suffer from it.

Brett Lennon of Freight On Board said Friday’s event was a success, raising $50,056 for the cause, bringing the total raised over the years to $386,000.

“Every cent raised has been donated in full to the Friedreich’s Ataxia,” Mr Lennon said.

“One of our guest speakers was Dr Jarmon Lees and it was also good to hear of some of the medical research and trials being conducted which one day may slow or even eliminate this terrible disease.”

Mr Lennon thanked event sponsors AGS and ACFS as well as everyone who participated, donated to and supported the “very worthwhile” cause.

“It’s really important to us is that the sufferers live as good a life as they possibly can,” he said.